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Home
Cushing's Help and Support
Welcome to the latest Cushing's site, Guest!
Please be sure to register for this site to take advantage of all its features!
Due to a large number of would-be spammers and hackers, a larger measure of security has been added to the registration process. A passphrase is now required to register for this site. You can get this here. Sorry for any inconvenience!
Please note that all new members must be approved by an administrator before continuing.
Coming soon! A Cushing's App for the iPod/iPhone. There's a mockup you can play with at http://bit.ly/91hdQw
Right now it has Podcasts, Cushing's News, Latest Bios, Upcoming Events, Blog, Twitter, NIH Trials, the latest posts on the Message Boards, Helpful Links, New MDs, Johns Hopkins, Mayo Clinic, PubMed, WebMD.
NEW! Occasional Newsletters are Back: The newest newsletter is March 4, 2010. Members of this site will automatically receive these occasional newsletters. Of course, you may opt-out at any time. Thank you for your interest. Non-members may subscribe through the Newsletter Subscription module on the left side of this page.
New! Cushie Toolbar: Be the first to know! The Cushie Toolbar features a Google search box, the 911 Adrenal Crisis! page, the Cushie Reads book recommendations page, Cushie Calendar, all the bios, arranged by diagnosis type or date, add (or update) your bio, our locations around the world, the message boards and chatroom, Helpful Doctors list, add (or update) your Helpful Doctor, support page, scrolling message area for Cushing’s news, Cushing’s blogs, NIH Clinical trials for Cushing’s, pituitary and adrenal, the Cushings Help Organization cause on Facebook, Staticnrg and Cushings on Twitter, new CushieWiki and listen to the Cushing’s podcasts right from this toolbar.
New! CushieWiki: Please feel free to contribute! The CushieWiki is an ever-changing, ever-growing body of Cushing's knowledge provided by *YOU* and other patients.
NEW! Snap Shots: I'm trying a tool on this site called Snap Shots which enhances links with visual previews of the destination site, interactive excerpts of Wikipedia articles and Amazon products, display inline videos, , , photos and more.
Sometimes Snap Shots bring you the information you need, without your having to leave the site, while other times it lets you "look ahead," before deciding if you want to follow a link or not.
Should you decide this is not for you, just click the Options icon in the upper right corner of the Snap Shot window and opt-out. You will never see these again on this site.
On Twitter? We have started a Cushing's group there, too at http://twittgroups.com/group/cushings. There is also a Twitter "twibe" at http://twibes.com/cushings.
On Facebook?
The Cushing's Help Cause currently has 1,294 members and the Cushing's Help and Support Group has 493. There is also a new "page" for the Cushings Help Organization, Inc. Become one of the 68 Fans. Please join us!
A site translation feature has been added to all pages. On the right side of every page there is a box containing flag icons. Click the flag icon to translate the page into another language.
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Last Updated ( Friday, 05 March 2010 09:25 )
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Interested? Read More...
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A Note From the Founder, MaryO |
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I saw this on another site and I stayed up all night making one for Cushies because I thought it was so cool.
This is a toolbar you can install on any browser and it will link to what I think are the most important parts of the Cushing’s websites. If you have other ideas, please let me know.
Right now, this contains (from left to right)
- The Cushie ribbon icon which takes you to the home page of the newer cushie.info site. Click on the little down arrow to the right of the ribbon and another whole menu appears!
- Next to that is a Google search box.
- An icon for the 911 Adrenal Crisis! page
- A link to the Cushie Reads book recommendations page on amazon.com
- The Cushie Calendar
- All the bios, arranged by diagnosis type
- Add (or update) your bio
- Our locations around the world
- The message boards and chatroom
- Helpful Doctors list
- Add (or update) your Helpful Doctor
- The Support page where people can make donations to help keep all these websites going.
- A little scrolling message area for Cushing’s news.
- Cushing’s blogs. I’m still working on this – and I’m not sure how many I can add but for the moment, this blog is included as well as Cushie Bloggers and survive the journey
When any of these update, the icon changes to show that there are new posts.
This area now includes NIH Clinical trials for Cushing’s, pituitary and adrenal. Be the first to know when new trials are listed.
- The Cushings Help Organization cause on Facebook
- Links to Staticnrg and Cushings on Twitter. Again, more can be added. If you talk mostly about Cushing’s on Twitter, please let me know.
- The new CushieWiki. BTW, please feel free to sign up and become a contributor/editor.
- A radio button – you can play the Cushing’s podcasts right from this toolbar. You can also add stations that you’d like to listen to.
- You can also add other modules like games, weather, email, hundreds of different things.
Download this toolbar or see a sample.
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Last Updated ( Sunday, 10 January 2010 14:10 )
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Read more: A Note From the Founder, MaryO
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Cushing's iPhone/iPod Apps |
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Coming soon! A Cushing's App for the iPod/iPhone. There's a mockup you can play with at http://bit.ly/91hdQw
Right now it has Podcasts, Cushing's News, Latest Bios, Upcoming Events, Blog, Twitter, NIH Trials, the latest posts on the Message Boards, Helpful Links, New MDs, Johns Hopkins, Mayo Clinic, PubMed, WebMD.
More may be added before this goes live later this month.
People have suggested symptoms and/or drug trackers. Robin found us a really neat way to make our own individual specially tailored apps.
The following directions are adapted from http://www.doseofdigital.com/2010/01/build-iphone-medication-tracker-10/ and could also be used to track surgeries, weight, anything you want.
How to Build Your Own iPhone Tracker/Reminder System:
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Read more: Cushing's iPhone/iPod Apps
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Donors and Subscribers, 2010 |
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Many thanks to these 2010 Donors and Subscribers! We couldn't do it without you!
Carolyn P
Christopher S
Debra V P
Ellen G
Jennifer S
Lil Dickens Ranch
LinkArtist Multimedia
Lisa D
Robin S
Sarah L
Sherry C
Susan F
Téa B
Past Donors
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Last Updated ( Thursday, 25 February 2010 12:27 )
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Read more: Donors and Subscribers, 2010
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Please note that you must be a logged-in member of this site to read these archives.
- February, 2010
- January, 2010
- December, 2009
- November, 2009
- October, 2009
- September, 2009
- August, 2009
- July, 2009
- June, 2009
- May, 2009
- March, 2009
- February, 2009
- January, 2009
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Last Updated ( Friday, 26 February 2010 13:09 )
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