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We have started the  501(c)3 (non-profit) filing procedure!  We now have our EIN and Articles of Incorporation have been approved.  We're now a Virginia Corporation!  Lot's of paperwork and IRS approvals but we're getting closer.

Cushing's Info

It's About Time There Was Some Support!

 

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The Next Scheduled Text Chat

The Next Scheduled Text Chat

Scheduled Text Chats are every Wednesday starting at 9:00 PM Eastern. The Chatroom is always open so you can chat whenever you want. Click the title above (The Next Scheduled Text Chat) to access the room.

New Guests To Be Scheduled

New Guests To Be Scheduled

We always need people to be interviewed in the BlogTalk Interview series. These interviews usually take place on Thursday nights at 7:30PM Eastern but you can do this at any time that's convenient for you. You do not need to be diagnosed to be interviewed!

Upcoming Interviews

Upcoming Interviews

Next Interview: TBA. Upcoming guests include Sherri, Monica, Debbie, PhilB, Elizabeth, Steve, Missaf, Tammie, Jada, Jen, Traci, Cindy, Jo and Corrie, Nicole (copacabana) and Dr. William Ludlam.

Newsletters!

Newsletters!

The Current Newsletter includes Cushing's news, abstracts, interviews, new bios, Helpful Doctors, meetings and site news.

Upcoming Events

Upcoming Events

Johns Hopkins Pituitary Day, Baltimore, MD, September 25, 2010; 5th CA Pituitary Conference and 1st CA Hormonal/Pituitary Symposium, Marina Del Rey, CA, October 2, 2010; Cushie Convention 2011, Winnipeg, MB, Canada or St. Louis, MO, USA, 11/18-20/2011; and tentative meetings in New England and Seattle, WA

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" This site is invaluable to anyone suffering. The amount of information can be overwhelming because it is so plentiful. The forum is wonderful. Up to date information, wonderful people who give help, information; support and Hope! "
KimS

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Welcome to our Newsletters! Members of this site will automatically receive these occasional newsletters. Of course, you may opt-out at any time. Logged-in members: Your name and email below are private. Only you can see them.
Thank you for your interest. ~MaryO, founder Cushings Help Organization, Inc.

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Cushing's Help and Support
28
Aug
2010
Welcome to Cushie.info! PDF Print E-mail

Welcome to the latest Cushing's site, Guest!

Please be sure to register for this site to take advantage of all its features!

Due to a large number of would-be spammers and hackers,  a larger measure of security has been added to the registration process.  A passphrase is now required to register for this site.  You can get this  here.  Sorry for any inconvenience!

Please note that all new members must be approved by an administrator before continuing.

NEW! The Cushing's Boards are almost finished with a major upgrade and facelift.  Those are now optimized for viewing on cellphones, as well.

NEW! Daily News Summary at Cushing's Daily News

NEW! This site is now optimized for viewing on PDAs and mobile phones

Medical Centers. These are centers which specialize in Cushing's, pituitary or adrenal patients.  If you, as a patient, have one that you'd like to have added, please send any info you may have to Mary O'Connor (MaryO).  Thank you!

Occasional Newsletters are Back: The newest newsletter is March 4, 2010. Members of this site will automatically receive these occasional newsletters. Of course, you may opt-out at any time. Thank you for your interest.  Non-members may subscribe through the Newsletter Subscription module on the left side of this page.

Cushie Toolbar: Be the first to know! The Cushie Toolbar features a Google search box, the 911 Adrenal Crisis! page, the Cushie Reads book recommendations page, Cushie Calendar, all the bios, arranged by diagnosis type or date, add (or update) your bio, our locations around the world, the message boards and chatroom, Helpful Doctors list, add (or update) your Helpful Doctor, support page, scrolling message area for Cushing’s news, Cushing’s blogs, NIH Clinical trials for Cushing’s, pituitary and adrenal, the Cushings Help Organization cause on Facebook, Staticnrg and Cushings on Twitter, new CushieWiki and listen to the Cushing’s podcasts right from this toolbar.

CushieWiki: Please feel free to contribute! The CushieWiki is an ever-changing, ever-growing body of Cushing's knowledge provided by *YOU* and other patients.

On Twitter? We have started a Cushing's group there, too at http://twittgroups.com/group/cushings. There is also a Twitter "twibe" at http://twibes.com/cushings.

Follow us on Twitter

On Facebook?

The Cushing's Help Cause currently has 1,569 members and the Cushing's Help and Support Group has 554.  There is also a new "page" for the Cushings Help Organization, Inc.  Become one of the 196 Fans. Please join us!

 

 

A site translation feature has been added to all pages.  On the right side of every page there is a box containing flag icons.  Click the flag icon to translate the page into another language.
Last Updated ( Saturday, 28 August 2010 10:15 )
Interested? Read More...
 
02
Sep
2010
September 2010: Cushing's News PDF Print E-mail

Daily News Summary...

Something new of interest to Cushies most every day.

September 2, 2010:
 
04
Aug
2010
Help Support Children With Cushing's PDF Print E-mail

Donna Sellers' wonderful organization, John's Foundation for Cushing's Awareness is selling Entertainment Books again this year.

Donna writes: "Just wanted to let everyone know that our foundation is having their annual coupon book fundraiser.  They are $25.00 this year but there are savings of over $13,300 in the books.  Please help us continue to help children with Cushing’s."

Buy your book at http://www.jfcainc.com/itemsanddonations.html

Thanks!
 
10
Jan
2010
A Note From the Founder, MaryO PDF Print E-mail

I saw this on another site and I stayed up all night making one for Cushies because I thought it was so cool.

This is a toolbar you can install on any browser and it will link to what I think are the most important parts of the Cushing’s websites. If you have other ideas, please let me know.

Right now, this contains (from left to right)

  1. The Cushie ribbon icon which takes you to the home page of the newer cushie.info site. Click on the little down arrow to the right of the ribbon and another whole menu appears!

    Home
  2. Next to that is a Google search box.
  3. An icon for the 911 Adrenal Crisis! page
  4. A link to the Cushie Reads book recommendations page on amazon.com
  5. The Cushie Calendar
  6. All the bios, arranged by diagnosis type
  7. Add (or update) your bio
  8. Our locations around the world
  9. The message boards and chatroom
  10. Helpful Doctors list
  11. Add (or update) your Helpful Doctor
  12. The Support page where people can make donations to help keep all these websites going.
  13. A little scrolling message area for Cushing’s news.
  14. Cushing’s blogs. I’m still working on this – and I’m not sure how many I can add but for the moment, this blog is included as well as Cushie Bloggers and survive the journey

    When any of these update, the icon changes to show that there are new posts.

    This area now includes NIH Clinical trials for Cushing’s, pituitary and adrenal. Be the first to know when new trials are listed.
  15. The Cushings Help Organization cause on Facebook
  16. Links to Staticnrg and Cushings on Twitter. Again, more can be added. If you talk mostly about Cushing’s on Twitter, please let me know.
  17. The new CushieWiki. BTW, please feel free to sign up and become a contributor/editor.
  18. A radio button – you can play the Cushing’s podcasts right from this toolbar. You can also add stations that you’d like to listen to.
  19. You can also add other modules like games, weather, email, hundreds of different things.

Download this toolbar or see a sample.
Last Updated ( Sunday, 10 January 2010 14:10 )
Read more: A Note From the Founder, MaryO
 
23
Jul
2010
Archived Articles PDF Print E-mail

Please note that you must be a logged-in member of this site to read these archives.

 
Last Updated ( Friday, 23 July 2010 09:56 )
Read more: Archived Articles
 
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