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Cushing's Info

It's About Time There Was Some Support!

 

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The Next Scheduled Text Chat

The Next Scheduled Text Chat

Scheduled Text Chats are every Wednesday starting at 9:00 PM Eastern. The Chatroom is always open so you can chat whenever you want. Click the title above (The Next Scheduled Text Chat) to access the room.

New Guests To Be Scheduled

New Guests To Be Scheduled

We always need people to be interviewed in the BlogTalk Interview series. These interviews usually take place on Thursday nights at 7:30PM Eastern but you can do this at any time that's convenient for you. You do not need to be diagnosed to be interviewed!

Upcoming Interviews

Upcoming Interviews

Next Interview: Sarah (saberlowe), February 25, 2010, 7:30PM eastern. Sarah has been sick for 9 years before her diagnosis in October 2009. She had pituitary surgery to remove 4mm x 5mm adenoma in November 2009.

Newsletters!

Newsletters!

The Current Newsletter, February 4, 2010, includes Cushing's news, abstracts, interviews, new bios, Helpful Doctors, meetings and site news.

Upcoming Events

Upcoming Events

Local Lunch, New Jersey, February 20, 2010; UVa Pituitary Days 2010 conference, April 16-17, 2010 in Charlottesville, VA; Cushing's Lunch, Metro DC area, April 25, 2010; Magic Foundation Conference, including Cushing's and Growth Hormone Issues 6/11-13/2010 in Chicago; Endo 2010 (San Diego, California) 6/19-22/2010; Cushie Convention 2011, Winnipeg, MB, Canada or St. Louis, MO, USA, 11/18-20/2011; and tentative meetings in New England and Seattle, WA

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" Mary, many, many thanks to you for what you do for us. Without this site and the efforts you put into it, no doubt, most of us would still be sick, or dead! You've saved so many lives by your efforts and caring! Thank you so much! I hope you have a wonderful birthday and get to do something special and fun! "
Gracie

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Welcome to our Newsletters! Members of this site will automatically receive these occasional newsletters. Of course, you may opt-out at any time. Logged-in members: Your name and email below are private. Only you can see them.
Thank you for your interest. ~MaryO, founder Cushings Help Organization, Inc.
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Cushing's Help and Support
14
Sep
2009
(Pituitary) Brain Surgery Through the Nose PDF Print E-mail

Procedure Removes Tumor Through Nostrils

By JOSEPH BROWNSTEIN
ABC News Medical Unit

Sept. 14, 2009—

 

 

Photo: Brain Surgery Through The Nose
Dr. Ameet Singh, an otolaryngologist at George Washington University Hospital, performing endoscopic brain surgery.
(Courtesy George Washington University Hospital)

A survivor of brain surgery, Kellie Graham considers herself lucky because she was diagnosed early, because she received advanced medical care and because she had a type of tumor that could be removed through her nose.

Graham had a tumor at the base of her brain, a pituitary tumor that was removed via a relatively novel technique known as endoscopic brain surgery. In this procedure, an endoscope is put through the nasal passages and an incision is made in the back by an otolaryngologist -- an ear, nose and throat surgeon -- and then handed off to a neurosurgeon to remove tumors at the base of the brain.

"I felt really comfortable with it because both physicians explained to me exactly what they were going to do," said Graham, describing how she felt after she learned about the surgery.

She also was aided, she said, by the reassurances of a friend who had undergone a similar operation before.

Read more: (Pituitary) Brain Surgery Through the Nose
 
16
Sep
2009
Pituitary Awareness Week PDF Print E-mail

Pituitary Awareness Week takes place during the week of 20-26 September 2009. Lynda Lloyd, a volunteer for the Pituitary Foundation, has succeeded in securing a place on the plinth in Trafalgar Square to mark Pituitary Awareness Week. The plinth, the empty "Fourth Plinth" in Trafalgar Square, is currently a "living art monument" that will continue 24 hours a day for 100 days. Lynda will be on the plinth, wearing a Pituitary Foundation t-shirt, on Saturday, 26 September 2009 from 11:00 – 12:00. If you are in London or the surrounding area, please go to Trafalgar Square and give Lynda some support. For those of you not close to London, you can watch Lynda on the plinth live on the web at the link below.

There are plenty of other activities going on during Pituitary Awareness Week. For full details, visit the Pituitary Foundation website below.

Pituitary Foundation

The plinth (live link)

Read more: Pituitary Awareness Week
 
02
Sep
2009
Local Liaisons PDF Print E-mail

We always need people to act as local liasons, setting up meetings, contacting new people, just being there for other Cushies.

If you would like to be a Local Liason for your area, please contact Mary O'Connor (MaryO) with your area, type of Cushing's, name on the message boards (if any) and any other info that others might find helpful such as a link to your blog or bio or doctor name.

Thanks for offering to help!

Read more: Local Liaisons
 
24
Aug
2009
A young writer with much to say PDF Print E-mail

Haley Walsh with the medal she won for her science project on Cushing’s disease.
Haley Walsh with the medal she won for her science project on Cushing's

By Beverly Beckham

Globe Columnist / August 23, 2009

 

Haley Walsh wants to be a writer. That’s her dream.

What she doesn’t realize is that she is a writer.

She has already penned a series of children’s books and published a newspaper. She keeps a journal, collects facts, and is always scribbling notes to herself. Plus, she says very writer-like things like, “In 30 years I want to remember every detail.’’ And, “It helps me to write out stuff.’’

Haley was writing even before she got sick. But it was her sickness that inspired her journal.

“My Adventure 12-27-06. Part 1. Starting.’’ That’s how it begins. She was just 8 when she was diagnosed with Cushing’s disease, a tumor on the pituitary gland, rare among adults but rarer still in children.

Read more: A young writer with much to say
 
10
Aug
2009
Addison's CD PDF Print E-mail

This looks like this might be good for those of us with secondary Addison's, too!

 

2009 Conquering Addison's Disease - The Empowered Patient's Complete Reference - Diagnosis, Treatment Options, Prognosis (Two CD-ROM Set)

2009 Conquering Addison's Disease - The Emp...
by PM Medical Health News

Read more: Addison's CD
 
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