Total Members : 910
Latest Member : sunsetgirl67
This Week : 5 Registers
This Month : 9 Registers
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Home
Cushing's Help and Support
Something new of interest to Cushies most every day.
May, 2012: Please note that there is a current backlog of about two weeks for submitted bios to be added to the website. We apologize for the wait, and thank you for your patience.
News:
On the Websites:
Interviews and Podcasts:
New Bios:
Newest Helpful Doctors:
Media:
Clinical Trials:
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Last Updated ( Thursday, 17 May 2012 07:52 )
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Help Cushing's Help at No Cost to You |
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Clicking Still Works! Support Cushing's ...With A Click.
As you know, Cushing’s Awareness Day is April 8, 2012. Greater awareness and more resources can positively impact the lives of our fellow Cushies—and you can do something about it.
Now through April 20th, Corcept Therapeutics will donate $5 to the Cushing’s Support and Research Foundation (CSRF) and Cushing’s Help for your click.
Make an impact in the Cushing’s community today through a simple click (http://cushingsawareness.korlym.com/). Spread the word among your friends and family, and watch your impact grow!
Click to see full safety (http://cushingsawareness.korlym.com/#iisi) and prescribing information (https://www.korlym.com/docs/KorlymPrescribingInformation.pdf), including boxed warning.
The Cushing's Help family includes:
Help Cushing's Help at no charge to you!
From iGive.com:
We've just surpassed 21,000 "Likes" on Facebook, so we're celebrating.
We're inviting 21,000 new people to start using iGive by Dec. 31. They'll earn $10 or more free for Cushings Help. Actually, you get to do the inviting, we'll provide the money.
Just send invitees this link or post it on Facebook or other sites (you can even forward this e-mail):
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Last Updated ( Saturday, 21 April 2012 06:20 )
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Welcome to the latest Cushing's site, Guest!
Please be sure to register for this site to take advantage of all its features!
Due to a large number of would-be spammers and hackers, a larger measure of security has been added to the registration process. A passphrase is now required to register for this site. You can get this here. Sorry for any inconvenience!
Please note that new members may be approved by an administrator before continuing.
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Last Updated ( Sunday, 18 March 2012 02:15 )
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The Helpful Doctors pages from the original site are completely updated and added to this newer site.
UPDATE! If you are a member of this site, you may add your own Helpful Doctor(s) to the list. As always, advertising is not accepted. Doctors (or doctor's staff members) may not submit his/her own information.
Members can also rate doctors and add comments.
Step by step directions for how to add your Helpful Doctor
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Last Updated ( Saturday, 11 September 2010 11:25 )
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Do You Blog About Your Health? |
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Tufts University Medical School: Patient Blogging Survey
INFORMED CONSENT FOR PARTICIPATION
Thank you for taking part in a Tufts University School of Medicine graduate research project to examine patient blogging.
Purpose of the Study: The purpose of this study is to examine the use of patient blogs.
What will be done: You will complete a survey, which will take 10-15 minutes to complete. The survey includes questions about your blogging history. We also will ask for some demographic information (e.g., age, marital status,education level) so that we can accurately describe the general traits of survey participants.
Confidentiality: Your responses will be kept completely confidential. We will NOT know your IP address when you respond to the survey. We will ask you to include an e-mail address when you complete the survey so that we can enter you in the drawing for the gift certificate. However, your e-mail address will not be stored with data from your survey. You will be assigned a participant number, and only that number will appear with your survey responses.
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" Please stand up and be acknowledge. Brag all you want. If it weren't for this site I would have no knowledge about Cushings except for a picture of "me" in an old medical text book. The only thing in that book was a picture of a lady that could have been my twin and 2 paragraphs with some symptoms and the word "rare". Every doctor that I have met to date still uses that word. I appreciate and applaud you for all you do. Thank you. "
Angela
Read These?
Nanometer, undiagnosed bio
I'm a 35 year old female, I suspect I have Cushings, as I have all the symptoms including stretchmarks from torso to knees, abdominal weight gain, thin arms/legs, weak muscles, severe imsomnia, can't [ ... ]
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Incredible weight loss!
So, I haven't been on in a while (Hello, everyone! I missed reading about you all and your kind words of encouragement!) mostly because life has been going in the right direction and I haven't wante [ ... ]
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