Cushing's Info

My bio... well where do I start?   I have read so many stories and like everyone else... I too have been suffering from multiple symptoms for years.  My doctors have also been the ones that say "stop eating so much and you might be able to lose some weight!"  or the famous "Gee your blood pressure is high.... are you eating too much salt??"  in which I say "no... I don't even use salt on my food...."  I am finding that doctors blame one thing on another thing... like well your blood pressure is up because your sugars are high.... or your sugars are high because your blood pressure is too high."  they never tend to look at the WHOLE picture.. it is just one thing... let's try to resolve it.

I have been telling my doc for years now that I just don't feel good... and that I am getting weaker and weaker and that each passing day feels worse to me.. I seriously think there is something wrong with me.....

FINALLY in Jan of this year, 2009, I had severe pain in my lower right abdomen.... doc sent me to the hospital to find out what was going on.... they thought my appendix was acting up..... well they still don't know why I had that pain... but in the process they did a CT scan... and low and behold found a tumor in my left adrenal gland..... ta da...... here I am .. thinking OK... what do we have to do to deal with that???   I'll do whatever it takes...

I just in the last year lost both of my parents to cancer.... and NO cancer is going to take me down.... I saw my family doc and she said that I was her first ever patient with an adrenal tumor... I thought that was kind of touching... and special.. LOL  Have to make the best of it ... right??  Anyways... with that she did a whack of blood tests... urine tests (24 hr) and saw so many things that she said I needed to see an endo doc.... well in Canada nothing with the medical profession is quick.... so I had to wait 6 months to see her.... meanwhile I was bombarded by other appts.... I had to see a Haematologist as I have high white cell count..... I had to see a Diabetic specialist... as my blood sugars are high.... I had to see a specialist about my high blood pressure.... NONE of them had any answers for me.....

so I took it to myself to start reading online and researching..... information is a wonderful thing..... I know that sometimes people can go overboard.... but wow.... some of the websites I found about Cushings, when I opened them... I just sat here and cried..... bawling and bawling..... my son and boyfriend must have thought I was crazy... but by this point I was feeling really crazy.....I cried mostly because I thought FINALLY there is hope.. there is an answer to why I feel the way I do, why I ache and hurt the way I do.... and mostly for why I look the way I do.... I still to this day have no concrete answers but...

I have seen the endo doc... she said I have to do another test... the dex supression test... but she said it could be cushings... it could be pseudo cushings... but that she will get to the bottom of it... :)  and I BELIEVE her... I am still wishing I knew what we could do for the lack of energy and the exhaustion I feel... and get rid of the pain so maybe I could sleep at night.... but... one day at a time.... I can't take much until after I have this test..... but... I am hopeful and I am confident that some day I will feel good......

I LOVE this site.. and am so happy it exists..... plus thankful for the internet as it has such a wide variety of knowledge out there for all of us.   I would love to connect with others and chat about these things and more.... so if you want you can email me and we can go from there... Thank you and have a truly wonderful day!!!!!!

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