Cushing's Info

I have been struggling with rapid weight gain and fatigue and headaches for the past 8 years or so.

Finally after a lucky break after I fell i had a ct scan on my head and they saw an adnormality, then followed and MRI and then the worst thing i have ever heard in my life.  You have a macroadenoma on your pituitary gland that could be causing your headaches says my GP and then he says that  because my cortisol which was high but borderline that i don't have cushings.

So he refered me to an endo and he did a panel of bloodwork and my acth is off the charts.  So he thinks its cushing's disease...next is the IPSS and then surgery I guess.  I am just having a hard time coming to terms with some one like my GP stating that i don't have it after all the signs point to it.  It is just beyond me to wonder why some one wouldn't help.  I feel left out in the cold and wish i could have fixed this 8 years ago.  They figure i have had this acth secreting tumour for about 8 years...hence the worry for eight years.

I have been off of work now for about 2 weeks and with all the things going on I may be off a while...just disrupting my life.  Hard to cope but  I am staying positive and I have a great wife who has been helping me through this as well as two great boys under the age of 3 so fun at home as well.

I  joined this website to find some common stories and mabye some help with some common ground.  Hope u guys can help and thanks to all who have already.

Email This e-mail address is being protected from spambots. You need JavaScript enabled to view it