Cushing's Info

Hello everyone...

My story is so much like others here.  I was in an auto accident in 04.  A teenager blew a stop sign and tboned me.  I had my 3 and 6 year old girls with me.  My husband was behind us in our other vehicle.  He wasn't close enough to see it but he was there quickly.  My girls suffered PTSD but otherwise checked out physically fine.  I had a head injury, blunt trauma to my chest and upper arm and I was a pretty big mess for a while.  I recovered enough to return to work but that only lasted 14 months.  The pain had increased to an intollerable level so I left work on disability.  I haven't returned since....that was 05.

Since then I have been to over 20 docs.  They look at me like I'm stupid and crazy and I want to scream at them that I'm not.  The docs that knew me before the accident know how I have changed but none of them could figure it out.  We kept looking at my spine, since I do have injuries from the accident but the symptoms didn't match the findings...so therefore, I must be crazy!!  It wasn't until 09, when my blood sugars spiked to over 600 and my neuro told me that if I didn't get to an endo I would end up in a wheelchair, that I got some help.  The insulin shots made a big difference.  I thought maybe we had found the problem.  I was an untreated diabetic.  My neuro said maybe.  Maybe the neuropathy would get better, maybe the memory problems would get better....maybe everything would get better but she wasn't sure.  When I saw her a few weeks ago she insisted that I was on steroids.  I'm not.  I told her about some of the other symptoms that had been bothering me and she did an ACTH test.  It came back low.

Now i'm working with my endo to get some testing done....24 hour cortisol...metabolic panel...we'll see where it leads us.  My neuro diagnosed Cushing's Syndrome right away but I'm not sure my endo will be so easily convinced.  It scared me when I found this site and realized that I could die from this.  I had given up on getting my life back but now I know I have to fight...and it will be worth it.  I kept telling the docs that nobody should have to live in this much pain...that it wasn't right...something was wrong.  I'll not give up now.