Cushing's Info

Hello! My name is Suzie and i live in london ( u.k ). I first started getting cushings symptoms 3 years ago. I had always been slim and started rapidly gaining weight for no reason. No matter how little i ate or how much i exercised the pounds kept coming. I was so confused and upset. The next  symptom  was my skin. Rashes on my face and arms -  almost like the butterfly rash seen on the face in lupus. This condition has changed me so much physically and i am really struggling to cope with that.. I feel trapped in a persons body i nolonger recognise and to be honest hate. My thyroid is also underactive and my blood sugars  ( insulin ) are not ok either so i am on thyoxine and metformin. I understand these problems are all knock on effects of the cushings disease.

After spending  a long time feeling like i was going mad i was finally diagnosed at the end of 2009 with cushings disease of the pituitary. Uptil this point i had never heard of cushings and i am very grateful to the doctors that did finally discover what was wrong. On March 31 2010 i was admitted to hospital for a transphenoidal hypophysectomy. Unfortunately the tumour was not found and so the surgeon took 1/2 the pituitary ( the right side ) but my cortisol levels remained high.  However my subsequent test results sugested the surgeon got very close to the tumour and so 3 weeks later i was back in hospital having another transphenoidal hypophysectomy -  this was on Monday of this week. This surgery is more hopeful as it is thought the tumour was removed and i am now waiting for the results.

At the moment the main thing that keeps me going is the hope i will be fixed and go back to being how i used to be. I hope everyone else on here also gets their life back on track as i know from my experience of this disease it makes life pretty hard.

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