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This is the latest in the Cushing's Help family of websites.  Be sure to check them all out! It all started with  www.cushings-help.com in July of 2000...

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Cushing’s Disease Research PDF Print E-mail
Saturday, 28 August 2010 10:03

Schlesinger Associates, a national market research company, is currently looking for Males & Females Age 21+ who believe they have Cushing’s Disease to participate in a one-on-one discussion over the phone.

We have times available:  Monday, August 23rd through Friday, September 3rd, 2010  


Qualified participants will be asked to give their opinions on the diagnosis of this disease and will be paid $75 for their time.  


If you are interested please call toll-free (866) 236-1754 and ask to speak with Patrik Tirda (x 304).  You will be asked only a few questions to see if you qualify.


This Is Not A Clinical Trial!

As always, your privacy is respected; all answers are confidential.


Schlesinger Associates • 31 St. James Avenue • Suite 930 • Boston, MA 02116 • 617-542-5500

 
A shareable HIPAA clarification flyer PDF Print E-mail
Saturday, 24 April 2010 13:12

Click to open PDF

Teaching HIPAA with a Seinfeld clip

Last Tuesday I testified at a policy meeting in Washington. One point that came up was the frequent wrong impressions patients encounter among medical staff regarding medical records. The truth is, you’re entitled to a copy of your medical records. Don’t let anyone tell you “That’s not our policy”!

We also discussed how useful it would be if we had some quick, informative, entertaining training tools to convey points like that.

Well, why wait for an act of Congress? I made one up. Click to view, print, or download the full page PDF (413k).

Share freely.
________

Trivia:

  • The clip in this flyer is from Seinfeld episode #139, “The Package.” It was first broadcast on October 17, 1996, eight weeks after HIPAA was signed into law.
  • Your right to your records is specified not in the law itself, but in the regulations that were written by the Executive Branch to implement the law. (That’s what regulators do: they write the regulations.)
  • So when this episode aired, Elaine was not entitled to her record. Today she would be.
From http://epatientdave.com/2010/04/23/elaine-and-kramer-play-gimme-my-damn-data/
 
World Cushing’s Awareness Day PDF Print E-mail
Friday, 09 April 2010 14:30

Chesterfield, MO–This afternoon at the Samuel C Sachs branch of St Louis County Library, Mayor John Nations of Chesterfield proclaimed today ‘World Cushings [sic] Syndrome Awareness Day’.

Mr Nations presented this proclamation to Ms Susan K Findley, a survivor of the syndrome. She said ‘It was an honor to be recognized by the mayor today. I greatly appreciate him taking time to attend our Cushing’s Awareness event and for issuing and presenting me with the proclamation. He has helped to stoke the fire for my endeavor of speading [sic] the word about Cushing’s. I will continue my fight against this brutal condition that could have ended my life and has ended many lives of people around the world, including a couple friends of mine. Lingering symptoms continue to affect me in most of my daily activities, though I am very fortunate to have support of fellow ‘Cushies’ in groups like ‘Cushies on Facebook’. My hope is to spread knowledge and awareness about Cushing’s Syndrome, starting online and in my local community, and not stop until there is global awareness so that no more lives are claimed by this horrible condition that doesn’t care who it ambushes.’

Cushing’s Syndrome is named after the doctor who discovered it, Dr Harvey Williams Cushing, nearly 80 years ago. It is an endocrine disorder caused by high levels of cortisol in the blood. It also has many causes and can manifest over a very short or long time. The symptoms are often misdiagnosed as a combination of other ailments.

Susan Kate Findley is still fighting Cushing’s and intends to continue her advocacy on a global level. She invites everyone to visit the ‘Cushies on Facebook’ group at http://tinyurl.com/cushies .

Cushings Proclamation 2010

 

 

From http://louconrad.com/2010/04/08/world-cushings-awareness-day/

 
Cushing's Awareness Day at Jimmy Buffett's Margaritaville PDF Print E-mail
Thursday, 08 April 2010 19:49

Cushing's Awareness Day at Jimmy Buffett's Margaritaville

The picture in this photo is of Donna Sellers, her son, John, and Sonny Perdue, Governor of the State of Georgia. Donna is the president of John's Foundation for Cushing's Awareness and mother of a Cushing's patient. The foundation can be found at http://www.jfcainc.com/

Last Updated ( Tuesday, 22 June 2010 09:31 )
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Cushing's Awareness Day, April 8 PDF Print E-mail
Wednesday, 07 April 2010 23:58

 

 

What Can *YOU* Do to help?

Check out these ideas

Last Updated ( Sunday, 11 April 2010 12:11 )
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